Who Owns Your Health Data and Who Benefits? - with Jaana Sinipuro

Data is everywhere in health - but who controls it, and who actually gains from it? In this episode of the Health-ing Podcast, hosts Ushma Issar and Thomas Plochg sit down with Jaana Sinipuro, CEO of Data Space Europe, to unpack the shift from data platforms to value networks - where trust, consent, and public benefit guide how data flows. Jaana explains what a fair data economy really means: balancing the interests of individuals, society, and businesses so no single player dominates. Together they explore how data intermediaries and rulebooks can enable secure, interoperable data sharing without anyone “owning” the data - creating the foundations for proactive health and resilient ecosystems. With examples from farming and carbon markets, they reveal how power imbalances show up in data today - and how new governance models (like data cooperatives and shared standards) could return agency to people and communities. The big takeaway: if we want health-ing to be easy, we need digital systems that are human-centered, transparent, and sustainable - not extractive.